Offering guidance, resources, and a supportive community for those living with chronic urticaria. We see you. Find hope, strength, and a home on your journey with us.
For many people with chronic conditions, including chronic urticaria, barriers can create considerable roadblocks to optimal care and outcomes. Advocacy helps to call attention to these obstacles and offers solutions, amplifying the voices of patients and families and highlighting systemic gaps in care that might otherwise go unaddressed.
Our advocacy efforts focus on:
By raising these issues at local and national levels, we strive to break down these obstacles and promote equitable access to evidence-based, patient-centered care for all impacted by CU.
We also support self-advocacy, equipping people with CU and their families with urticaria education and tools. We encourage learning about your rights as a patient, engaging in shared decision-making with your healthcare team, and sharing your CU story. Every action contributes to a stronger, more empowered community and a future where CU is better understood, appreciated, and treated.
For many with chronic conditions, including chronic urticaria, barriers can create considerable roadblocks to optimal care and outcomes. Advocacy helps to call attention to these obstacles and offers solutions, amplifying the voices of patients and families and highlighting systemic gaps in care that might otherwise go unaddressed.
Our advocacy efforts focus on:
By raising these issues at local and national levels, we strive to break down these obstacles and promote equitable access to evidence-based, patient-centered care for all impacted by CU.
We also support self-advocacy, equipping people with CU and their families with urticaria education and tools. We encourage learning about your rights as a patient, engaging in shared decision-making with your healthcare team, and sharing your CU story. Every action contributes to a stronger, more empowered community and a future where CU is better understood, appreciated, and treated.
Discover inspiring stories from individuals whose lives have been touched by CU. Together, we are building a stronger, more connected community for those living with chronic urticaria.
Chronic urticaria felt inescapable. It took over every aspect of my life, personally and professionally. I wasn't sure where to turn or what my options were - or if there was even a way out of this illness.
I want to normalize this conversation … yes, I have this too. And you know, it might not go away this week, but how can we make it better this week? What can we do to cope?
It’s difficult to see my sister in such pain when her urticaria flares. It surfaces when she least expects it and is so disruptive to her daily life – and sometimes even to our plans as a family.
Chronic hives affects every part of your life, including your mental health. But with groups like We CU, I know there is hope!
As a patient advocate and someone living with a chronic condition, I understand how damaging it can to be ignore the conditions that are “not life threatening” and have the system –and often even yourself – underplaying the impact of those in your life. That is why I’m a passionate advocate for urticaria patients.
It just feels like a constant target on your back all the time
Urticaria shows me how strong I am: Every day is a new chance to surpass myself.
I took a year off, and then I was like, I have to pick up running again. I can't just sit and watch all my friends do all the fun things.
You have to let the doctor know you're willing to be involved and that you're going to ask questions every visit — that they need to be prepared for it.
We’re here to answer your questions, hear your feedback, and work together to make a difference.