We will not sell, share, or trade our donors’ names or personal information with any third party, nor send mailings to our donors on behalf of other organizations.
Effective as of: September 17, 2025
This Privacy Policy applies to all personal information received by We CU (“We CU,” “we,” “us,” or “our”), both online and offline, on any platform (including the We CU website at chronic-urticaria.org) as well as any electronic, written, or oral communications.
Contact We CU: info@chronic-urticaria.org
Your privacy matters to We CU. This Privacy Policy explains how we collect, use, disclose, and protect information relating to you or your device that can identify you (“Personal Information”) when you use our websites, applications, and other online services that link to this Policy (collectively, the “Site”). This Policy covers information collected directly through the Site and does not govern information collected through other channels (e.g., phone or postal mail), unless expressly stated.
Some Site features ask you to submit Personal Information—for example, when you subscribe to updates, create an account, make a donation, register for an event, contact us, or perform a search. Depending on the activity, information may include your name, email, postal address, phone number, and (for donations) payment information processed by our third-party processors. We may combine information submitted on the Site with information we collect offline and will treat the combined data under this Policy.
Unless we specifically request it (and obtain your explicit consent where required by law), please do not provide information about your racial/ethnic origin, political opinions, religious beliefs, health, criminal background, or union membership. If you provide such information unrequested, we may delete it at our discretion.
If any comment or community feature offers opt-in geolocation (e.g., via your browser), your location may be associated with your post and visible internally and publicly. You can manage geolocation in your device/browser settings.
As you navigate the Site, we may automatically collect certain information:
IP Address & Device Data: IP address, browser type/version, OS, screen resolution.
Social Media Widgets: The Site may include tools or plug-ins (e.g., “Share” buttons) that set cookies or otherwise collect data per the social platform’s privacy policies.
Cookies & Analytics: We use first-party cookies for core functionality and third-party analytics cookies (e.g., Google Analytics) to understand Site usage (time on page, referring URLs, etc.). We do not use analytics data to identify you and do not permit Google to use or share our analytics data for its own purposes.
Manage cookies via your browser settings (blocking some/all cookies may limit functionality).
Learn more about cookies/control: http://www.aboutcookies.org
Opt-out of Google Analytics: https://tools.google.com/dlpage/gaoptout
Do Not Track: The Site currently does not respond to DNT signals due to a lack of industry standards.
We use Personal Information to:
Provide and improve the Site and our programs/services
Process donations and send receipts/acknowledgements
Respond to inquiries and send requested information
Send important administrative updates (policy/terms changes, service notices)
Notify you about events, volunteer opportunities, and our mission
Conduct analytics, audits, fraud prevention, and recordkeeping
Evaluate surveys and feedback
Distribute content associated with requested/registered programs and services
Any other purpose disclosed at collection or with your consent
We may use non-identifying, aggregated, or de-identified information for any lawful purpose.
We CU does not sell your Personal Information. We may share Personal Information:
With affiliates and trusted service providers (e.g., website hosting, CRM, email delivery, analytics, payment processing) who act on our instructions and are bound to protect your information
For organizational changes (e.g., merger or transfer of assets)
As required by law (see Section 5)
We may use or disclose information as we believe necessary to:
Comply with applicable laws and legal processes (including outside your country of residence)
Respond to requests from public/government authorities
Enforce our terms and protect our operations, rights, privacy, safety, or property, or that of our users or others
Pursue remedies or limit damages
The Site may link to third-party websites/services. Their privacy practices apply when you leave our Site. We are not responsible for third-party content, policies, or practices. Review those policies before providing information.
We CU is based in the United States. Regardless of where you are located, your Personal Information may be collected and processed in the U.S., where data protection laws may differ from those in your jurisdiction.
We take reasonable and appropriate measures to protect Personal Information from loss, misuse, and unauthorized access, disclosure, alteration, or destruction. However, no internet transmission or electronic storage is 100% secure. We also strive to keep the Site available, but interruptions may occur.
We retain Personal Information as long as reasonably necessary for the purposes described in this Policy, unless a longer period is required by law.
Where applicable (e.g., GDPR), we process Personal Information based on our legitimate interests (e.g., providing a safe user experience; improving the Site; donor communications; safeguarding; analytics; and legal compliance), unless overridden by your rights and freedoms.
We may use limited automation (e.g., segmentation) to tailor communications and manage relationships. You can contact us to object to such processing where applicable by law.
Cookies/Analytics: Manage via your browser settings or the Google Analytics opt-out link above.
EEA/UK (and where similar rights apply): You may request access, correction, restriction, deletion, or objection to certain processing; and you may have data portability rights. To exercise rights, contact info@chronic-urticaria.org. You also have the right to lodge a complaint with your local supervisory authority; however, we encourage you to contact us first so we can try to resolve your concern.
Requests will be honored consistent with applicable law and subject to necessary limitations (e.g., legal obligations, rights of others, or our need to maintain certain records).
We may update this Privacy Policy from time to time. The “Effective” date reflects the latest version. Your continued use of the Site after updates constitutes acceptance of the revised Policy.
All inquiries (including privacy requests): info@chronic-urticaria.org
Welcome to chronic-urticaria.org, operated by We CU (“We CU,” “we,” “us,” or “our”). These Terms govern your use of our website (the “Site”). By accessing or using the Site, you agree to these Terms. If you do not agree, or if you are under 13 years of age, please exit the Site.
Content on the Site is for informational purposes only. We CU is not responsible for errors or omissions.
Certain features may require you to register and create an account and to agree to these Terms. You are responsible for your account and for safeguarding your password. You may terminate your account by contacting us at info@chronic-urticaria.org.
All content, graphics, code, and other materials on the Site (“Site Materials”) are owned or licensed by We CU and protected by law. You may not remove proprietary notices or use Site Materials except as allowed by these Terms.
All names, trademarks, service marks, logos, and slogans on the Site are proprietary to We CU or its licensors. Unauthorized use is prohibited.
You agree not to:
Use the Site for unlawful purposes
Copy, modify, distribute, display, perform, publish, license, create derivative works from, transfer, or sell any Site Materials without prior written permission
Attempt to gain unauthorized access to our systems or impair Site functionality
Interfere with security features or restrictions
Where the Site allows you to post or submit content (“User Content”), you represent you have the rights to do so and that your content does not violate others’ rights or any laws. By submitting User Content, you grant We CU a worldwide, perpetual, irrevocable, transferable, sublicensable, royalty-free license to use, reproduce, display, modify, and create derivative works from your content in connection with our mission and the Site.
If you believe content infringes your rights, email info@chronic-urticaria.org.
The Site may link to third-party websites or display third-party content for convenience. Use of third-party sites is at your own risk and subject to their terms and policies. We CU does not endorse or assume responsibility for third-party content, products, or services.
Personal Information provided via the Site is subject to our Privacy Policy (incorporated by reference). We cannot guarantee the security of information transmitted via the internet or email.
THE SITE, SITE MATERIALS, USER CONTENT, PRODUCTS, SERVICES, DATA, AND OTHER ITEMS AVAILABLE THROUGH THE SITE ARE PROVIDED “AS IS” AND “WITH ALL FAULTS.” WE CU AND ITS LICENSORS DISCLAIM ALL WARRANTIES, EXPRESS OR IMPLIED, INCLUDING WARRANTIES OF MERCHANTABILITY, FITNESS FOR A PARTICULAR PURPOSE, NON-INFRINGEMENT, ACCURACY, AND QUALITY. YOUR USE IS AT YOUR SOLE RISK.
WE CU AND ITS LICENSORS WILL NOT BE LIABLE FOR ANY INDIRECT, INCIDENTAL, SPECIAL, CONSEQUENTIAL, EXEMPLARY, OR PUNITIVE DAMAGES (INCLUDING LOST PROFITS) ARISING FROM OR RELATED TO YOUR USE OF THE SITE OR SITE MATERIALS, EVEN IF ADVISED OF THE POSSIBILITY. WHERE LIMITATIONS ARE NOT PERMITTED BY LAW, OUR LIABILITY SHALL NOT EXCEED $10 IN THE AGGREGATE.
You agree to indemnify and hold harmless We CU and its officers, directors, employees, agents, contractors, and licensors from any claims, losses, damages, liabilities, costs, and expenses (including reasonable attorneys’ fees) arising out of or related to your use of the Site, your User Content, or your violation of these Terms or applicable law.
We strive to keep the Site available but interruptions may occur. We may modify, suspend, or discontinue any part of the Site without notice. Transmission of content may be unencrypted and involve multiple networks and devices.
If you believe any content on the Site violates your intellectual property or other rights, please contact: info@chronic-urticaria.org.
The website features an educational chatbot designed to provide information about chronic urticaria and connect visitors with resources. By using this chatbot, you agree to the following:
Purpose and Limitations
Data Collection and Retention
User Responsibilities
No Guarantee of Accuracy
We’re here to answer your questions, hear your feedback, and work together to make a difference.
